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 Post subject: A radical cure but it worked
PostPosted: Tue Dec 18, 2012 4:09 pm 

Joined: Tue Dec 18, 2012 6:51 am
Posts: 3
I suffered from severe PMS for many years and had a total hysterectomy and both ovaries removed.

Since this time I have struggled to balance my HRT, or to put it better..i struggled to find the right dose of HRT but thanks to my consultant, (who educated my gp) and another menopause expert, I was able to experiement with a different type of oestrogen and different doses and I am now in a very happy place on oestrogen and testosterone therapy. I do not miss progesterone one little bit. My life has totally changed and I love it. The odd breakthrough menopause symptom is sooo worth the trade off for pms.

No more self harming, no more battling suicide every month, no more totally over reacting to situations, no more losing jobs and friends because of severe pms.

I met many lovely girls on my journey here on NAPS and I hope we can all help each other. :)


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 Post subject: Re: A radical cure but it worked
PostPosted: Tue Dec 18, 2012 10:40 pm 

Joined: Thu Nov 29, 2012 9:14 pm
Posts: 8
Great post Floralgirl and it will provide hope and reassurance to women who are going down the same route! Xx

_________________
Pms-pmdd sufferer for over 20yrs. Tried several natural therapies and medical ones for years. Total hysterectomy and oopherectomy 15.8.13 I'm FREE!!! On oestrogen and testo only now, life has begun :)


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 Post subject: Re: A radical cure but it worked
PostPosted: Tue Jan 08, 2013 7:55 pm 

Joined: Sat Jan 05, 2013 5:20 pm
Posts: 1
It worked for me too! I was determined to be cured of severe PMS / aka PMDD. After a great deal of research and reflection, at the age of 35 I elected to have a hysterectomy with removal of the ovaries (LAVH BSO), on the NHS, in February 2012. It has been very successful! I am free of the cyclical depression that was the bane of my life!

I blogged extensively about the process at http://msjekyllhyde.wordpress.com, intending to create the independent, straight-talking resource about hysterectomy for PMDD that I wished I'd had access to.

I am indebted to the brave women whose stories and advice I first encountered on the NAPS forum in 2011 (sadly the old NAPS forum posts have all been removed) – without the support of this community, I might not have plucked up the courage to go through with the hysterectomy, due to the regrettable lack of independent information available. I am still in touch with a number of these women, I am not aware of any who regret their decision to have a hysterectomy for PMDD.

Currently most GP's are WOEFULLY ill-informed/under-informed about how to diagnose and treat this disorder, this must be changed. BUT women must also empower themselves with knowledge in order to get the best out of a seven minute consultation with their doctor.

I won't be visiting the forum often, so please ask any questions via my blog. I wish you all the best in progressing your treatment. Be strong.


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 Post subject: Re: A radical cure but it worked
PostPosted: Thu Feb 07, 2013 9:47 pm 

Joined: Thu Dec 06, 2012 8:45 pm
Posts: 11
Hi there lovely ladies,

So glad to see you are feeling better and living your life free of PMDD.

Is a hysterectomy the final answer to end the nightmare of this horrendous condition and is it likely you have to go through the GNRH analogue process first?

The reason I ask is because I was told by a consultant that the GNRH analogues was like and I quote 'a sledgehammer to the system' I was also then put off again by the GP telling me I would not like the large needle being inserted into my stomach on a regular basis?

Can anyone shed light on this?

Also after seeing an endocrinologist today re: PCOS and bringing up the PMDD (although she is not the dr looking after me for this) she mentioned ovarian drilling and not a hysterectomy?

As always I feel rushed out of my appointment and as confused as I was when I went in.

If anyone can inform me further I would really appreciate this?

Thanks for your help.

Lots of Love & Well Wishes

XXX


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 Post subject: Re: A radical cure but it worked
PostPosted: Thu Feb 07, 2013 10:34 pm 

Joined: Thu Nov 29, 2012 5:00 pm
Posts: 79
Hi,

I have never heard of ovarian drilling but just had a look and apparently it can be an effective treatment for PCOS. I suspect it won't help with the PMDD at all though.

Some women use the GnRH analogues successfully for a while and move on to the op and some have the op without using the analogues at all. The "sledgehammer to the system" is correct but oh so worth it. The jags put you into medical menopause but the symptoms of this are much preferable to the PMDD symptoms. The jag can be given monthly or 3 monthly and although the needle is sizeable, it doesn't hurt too much but it is possible to use a local anaesthetic if it does hurt.

Depending which condition causes you the most problems would affect your choice of treatment I suspect. I used the analogues for many years but was unable to tolerate the progesterone add back HRT and so used unopposed oestrogen for a long time which caused me changes to my womb lining and led to me having the op. I would have ended up having the op at some point anyway for PMDD but while I used them, the jags worked really well for me.

I hope you can find a suitable treatment soon to help you. All the best. x

_________________
38 years old. Suffered PMDD for many many years. Had very successful treatment on GnRH Analogues and oestrogen only HRT. Had TAH + BSO 15/11/12 for severe complex atypical hyperplasia. Hopefully now completely symptom free permanently.


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 Post subject: Re: A radical cure but it worked
PostPosted: Tue Feb 12, 2013 10:31 pm 

Joined: Wed Dec 19, 2012 3:51 pm
Posts: 50
Hi Princess,

The GNrh analouges and total hysterectomy's are really radical and I think for some a last but well-needed resort. I am only 26 and definatley want children so won't entertain this idea yet - but totally one hundred per cent understand why sufferers of PMDD/PMS have this.

Have you tried other treatments yet?

BW, PMTHater


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 Post subject: Re: A radical cure but it worked
PostPosted: Wed Oct 16, 2013 8:30 am 

Joined: Fri Nov 30, 2012 9:50 am
Posts: 17
I used oestrogel to suppress my cycle with a tiny bit of testogel and 7 days of progesterone each calendar month. (doing it calendar monthly means you get one less period a year, rather than doing it 4 weekly). This was great apart from the progesterone part. I tried norethisterone and had terrible pms for about 5 days each month. I also tried utrogestan which was even worse!

I never tried GnRH analogues but had a TAH/BSO (hysterectomy with removal of ovaries and cervix too) on 8th August this year. As far as Im concerned its the best thing I ever did. Im still early days in my recovery but feel completely back to normal and am carrying on using the gels and never have to take progesterone ever again (yay!).

They usually like you to try GnRH analogues first but Im 48 and have absolutely had enough of pms and couldn't deal with it any longer, so they agreed I could have it done.


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 Post subject: Re: A radical cure but it worked
PostPosted: Mon Nov 04, 2013 4:29 pm 

Joined: Thu Jun 13, 2013 6:53 am
Posts: 3
I'm so pleased to hear your success stories! U have been to see my consultant today and been given a date In January for a total hysterectomy and oopherectomy, hopefully to be done keyhole. I have been on Professor Studds regime for 3yrs now and have been told I now have the complication of Complex Hyperplasia. The coil can help this but they ain't putting that thing inside me ever again! I don't tolerate it well at all. Very tearful, angry etc..... Not good! I did have it put in approx 3 months ago. Within 2weeks I felt horrid! Phoned professors office in floods of years, his secretary said "get it out today!" So , I'm here now stressing over the op. I'm scared as I did have PND after my first bAby in 2000, when I had Zoladex (2yrs post natal) I felt right back to PND again 21 days after first injection. I didn't have anymore and I didn't have any add back HRT.
So to cut a very long story short, I've been on professors regime for 3 yrs, since that time I have opened my own business!! Something I could never dream of before.
Anyone else had hysto done keyhole? What's a realistic recovery time? Would you say stay on the oestrogen post op, or try implant? Any advise or reassurance would be great right now,
Thank you all xxxx


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