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 Post subject: Doc has suggested Mirena Coil
PostPosted: Tue Jan 07, 2014 10:36 am 

Joined: Wed Dec 19, 2012 3:51 pm
Posts: 50
Hi ladies,

I am under a fantastic specialist at the moment - I went to see him yesterday and updated him on how I am getting on with my Oestrogel (4 x daily) and Progesterone (10 days a month)

I told him that I couldn't do the 10 days this month as the mood swings were terrible and I was annoyed that at xmas of all times I was giving my body something that it hated. I also told him that my first couple of days during menstruation is very painful and heavy.

He suggested that because I am intolerant to the progesterone and only taking it 7-10 days that womb lining is that much thicker, hence the heavier bleeding, nausea etc.

Therefore he has suggested the Mirena Coil - I told him I was reluctant as past contraceptives had truly sent me to the edge before and I hadn't heard great things about it. He reassured me that the coil doesn't agree with around 5 - 10% of women and the fact I will continue on the Oestrogel should be fine.

I wondered if anyone else has any opinions? I'm also extra nervous as I am getting married during the summer and do not need any extra health issues!


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 Post subject: Re: Doc has suggested Mirena Coil
PostPosted: Tue Jan 07, 2014 11:57 am 

Joined: Thu Nov 29, 2012 5:00 pm
Posts: 79
Hi,

Sorry to hear you had a tough time over Christmas, I can understand your annoyance at having to take the progesterone as I too am very progesterone intolerant.

I used the Mirena coil for a while many years ago and didn't get on with it at all so had to have it removed.

The only thing I can suggest is to give it a go and if it doesn't work, get it removed. The other option may be to reduce the number of times you take the prog through the year. I have several friends on oestrogel who only took prog 3 or 4 times a year to induce a bleed which meant that they could plan things (like your wedding, congratulations btw) and avoid taking it at these times. It might be worth discussing this option with your specialist and see if they would agree to it. All the best. x

_________________
38 years old. Suffered PMDD for many many years. Had very successful treatment on GnRH Analogues and oestrogen only HRT. Had TAH + BSO 15/11/12 for severe complex atypical hyperplasia. Hopefully now completely symptom free permanently.


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 Post subject: Re: Doc has suggested Mirena Coil
PostPosted: Wed Jan 08, 2014 8:23 pm 

Joined: Wed Dec 19, 2012 3:51 pm
Posts: 50
Hello,

Thanks for your reply :)

Yes I'm 'tooing' and 'froing' between going for it, or delaying until after the wedding - it would be super if all goes to plan but if it doesn't I'm just not sure I could deal with the fallout especially with all the added extra pressure of the wedding etc.

Its a tough one - anyone out there who has had success with the mirena coil?


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 Post subject: Re: Doc has suggested Mirena Coil
PostPosted: Tue Feb 18, 2014 10:59 pm 

Joined: Sat Apr 20, 2013 7:04 pm
Posts: 16
Hello

I had Mirena for a few years before I was prescribed estrogel and was convinced it was causing me millions of symptoms and wanted it out. Many Doctors have insisted to me that because its a localised low dose it shouldnt be causing symptoms. I have had estrogel for 7 months and kept mirena as sugested and have no problems things have radically improved. To be honest I just dont like the idea of something plastic being in my body but thats my mind. Its worked because my ovarian cycle has been supressed with the estrogel and al the symptoms I had with mirena alone have gone.
I have read so many comments about women being progesterone sensitive and obviously I cant comment how this will effect you but I'm definately pro anything local that doesnt go through liver. The pill mad me feel awfull but estrogel and mirena in my case are ok.
I have vast improvement from 8 years of suffering I just have very bad insomnia now . have you experienced any trouble sleeping with estrogel. Thanks J


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 Post subject: Re: Doc has suggested Mirena Coil
PostPosted: Wed Feb 19, 2014 12:55 pm 

Joined: Wed Dec 19, 2012 3:51 pm
Posts: 50
Hi Juliettes,

That's really great to know, thank you for coming back to me and letting me know how you have fared on.

I was supposed to have the mirena coil in Feb but couldn't do it, the fear of feeling unwell close to the wedding was too great. However, I think I'll go back in Sept and have a whizz of it then.

Yes that's so funny you mentioned that, I have had trouble sleeping these past few weeks and i couldn't work it out because ive been excercising like mad so surely I should be really falling sleep easily.

Did you doc mention anything about an increased chance of cancer with oestrogen? He's never mentioned it to me before, but I feel like I should ask...


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 Post subject: Re: Doc has suggested Mirena Coil
PostPosted: Wed Feb 19, 2014 9:46 pm 

Joined: Sat Apr 20, 2013 7:04 pm
Posts: 16
Hi pmthater

Thankyou for your reply I'm just new to this

Totaly relate to not wanting trouble at special times I've not yet managed to have a holiday that wasnt dominated.

I had mirena for four years before the add back estrogen. It definetely thinned the lining of my womb so performed on that level. I was later told by a pmt specialist that I shouldn't have had it without estrogen as a pmt sufferer. Other doctors told me I couldn't have estrogen so there are so many differing opinions.

In my opinion women as pmt sufferers are very tuned into their bodies and definetely know when things are not right. I was probably wrong that mirena was the cause of problems but I didnt understand I needed estrogen to supress my cycle. Good luck if you try.

I read a book called screaming to be heard which explains in a new light the estrogen cancer scare and how it was reported in the eighties this led to me seeking a UK doc with similar opinions who was advocate of bio identical topically applied estrogen (who has lots of info on her web site) obviously i cant name her on the forum. Therefore for me the cancer scare was minmimal compared do the destructive havoc my own cycle was causing my body. It has been reported Estrogel can even reduce the risk of other cancers.
My mum had a bad experience of estrogen in 70s when stronger and more synthetic and told me I couldnt have it. I wish I'd not believed this for so long as it stopped me trying it. I have always wanted to try the natural alternative option first but my 8 year quest for a solution has challenged this and hopefully made me more open minded. There is so much info on the internet especially against estrogen it can be quite scary I'm trying not to look as much now.

I've definetely benefitted from the energising side of estrogen but suffered from the brain wide awake especially when I'm really tired and would surely sleep.
I'm really struggling to find any dosage quide lines for estrogel. I dont want to pay for an expensive consultation to be told to either try a bit more or a bit less.
I'm not sure if my insomnia is the body being put into artificial menouause due to ovulation supression or whether the estrogel iself has a side effect of insomnia and the dose needs
tweaking????
If any of this helps then great if not sorry for the long reply (possibly rant)
If any one has any estrogel dosage info or can point me in the right direction please post x


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 Post subject: Re: Doc has suggested Mirena Coil
PostPosted: Thu Feb 20, 2014 1:25 pm 

Joined: Fri Nov 30, 2012 9:50 am
Posts: 17
Juliettes, I saw a private professor gynae a couple of years ago. I have always had terrible pmdd and then at age of 46 started having meno symptoms on top. He started me on 4 pumps of oestrogel daily, plus a tiny amount of testosterone because my libido was zilch, and norethisterone for seven days each calendar month. Doing it calendar monthly instead of 4 weekly means you get one less period a year. (Although I know ladies who take their progesterone less than this as pmdd survivor says).

I found the 4 pumps to be too much as I got very greasy skin and hair and broke out in spots. I decreased to 2 pumps. I tried 1 pump for a while but felt very low and had no energy. To cut a long story short I had a hysterectomy last August with everything removed. I was on 4 pumps at the time because I knew you needed more oestrogen after this op. However, I eventually found I needed about 8 pumps to get the same level of 'wellness'. This was when i switched to sandrena, as you need less of that for the same effect. Im on 2.5mg a day but I think I really need 3.

I never tried the mirena, pmthater, for the same reason as you (couldn't go through with it). I hated the idea of being stuck with something that is continually producing prog. At least if its in tablet form you can stop taking it if things are bad. I think you're doing the right thing by not trying it just before your wedding. Too risky! As you say, you can always try it later if you decide. All the best ladies! xxxx


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 Post subject: Re: Doc has suggested Mirena Coil
PostPosted: Thu Feb 20, 2014 2:36 pm 

Joined: Sat Apr 20, 2013 7:04 pm
Posts: 16
Hi crystal

Did you ever get any sleep disruption when changing estrogel dose ?
I'm using 2.75mg sand at moment. I think I just need to try tweaking.
I've had the greasy skin and hair it was very bad when my pmt suddenly got worse . Then everything went really dry and brittle when I had mirena only with no estrogel I thought at the time it was my hair straigtners. And now it varies between a bit greasy and ok

Thankyou for your reply


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